
kenz
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Everything posted by kenz
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i got lost on my way to a marilyn manson concert "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me
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i am bumping this just because it was locked last night after i was unaware of some rules and i apologize for breaking them... and i have now been given permission from HH to go ahead and do so anyway for those of you that have been asking and reaching out to laura this past week - thank you - it really has meant the world - if any of you can contribute anything - even if you just keep thoughts and prayers sent her way it would be greatly appreciated... if need be you can either contact me or go ahead and email molly directly thanks again for all of your support - i will keep you posted as best as i can i will be going out to visit her tomorrow so i will be MIA for a couple of days but i promise to get back to you all as soon as i get back... thank you again "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me
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i would reply yet again to explain but every time i do its deleted or locked - if you need more details than the PM i already sent let me know - thanks for actually showing interest "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me
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this was an email i received - since many of you have reached out i wanted to post this up here and ask for any more ideas - or offers for assistance - please guys we are asking for anything - and keep those prayers coming!!! and if anyone knows how i can set up a paypal account in her name that would be greatly appreciated again - thank you all ----------------------------------------------------- Hi guys. This is Molly B (for those of you who don’t know me or don’t recognize this email address). I am writing to you to ask for your help and support. As much as I hate to say this, unfortunately, Laura has hit a bump in the road and things are going to be very rough from here on out. Laura received updates today that her progress isn’t looking good and her options are limited in taking the next step in the road to recovery. She will know more after some appointments next week, but what it may come down to is her decision on whether or not to enjoy her quality of life and enjoy what time she has left or attempt a second transplant or other options that can possibly buy her some time and then look into possible clinical trials or new drugs that may be released in to the market soon since her body has stopped responding to the most recent drug treatments. There is also a possibility that Laura may be coming back to DE sometime soon to see her doctor’s here, but that is to be determined after next week. I am on a committee through our church that is working with her parents to form a support group to help with things that need to be addressed down the road. The main thing is to keep Laura thinking positively and to send her hope and faith. Unfortunately, Laura isn’t up for too much talking because she doesn’t want to think about the down side of things and doesn’t want to keep talking about her health. What she really wants from people is to hear good news and good things that are going on in her friends and family’s lives. Through the support group with the Presbyterian Ministry, I was asked to be the liaison to Laura’s friends and the support group. What they want and need is for us to send Laura good thoughts and humor. They suggested that perhaps, somehow, we can all take turns and send Laura a ‘joke a day’ email that can bring a smile to her face. We are also going to compile a scrapbook but we haven’t yet decided how we are going to do this. We were thinking that for anyone who is interested, they could create their own page and personalize it with pictures and things that are meaningful between Laura and you and then send it to me and we will put it together and send it to her. If that is an option and you are interested, please let me know so that I know how many to expect and I can get an idea of when I may be able to complete the scrapbook. To summarize the meeting we had tonight, these are issues we are addressing right now. - ASAP - A team with internet savvy and access to a computer to work on researching possible clinical trials for Laura - ASAP - publicize Laura's Carepage. - Ask people to donate frequent flyer miles - Ask people to donate hotel reward points (for visits to Laura; her home is small) - Explore fundraising if Laura gets into a trial; establish an account for donations. Currently one of our church members is a member of the band called ‘Club Phred’ that plays at local establishments around Newark. They have volunteered to play for a fundraising event (possibly at DeerPark in February since they have played there before) that will help us to raise money. This money can be used for the following things: sponsor a Bone Marrow drive, help pay for medical expenses, help with travel expenses and down the road, help pay for a transplant/clinical trial. What I am also asking is that you forward this email on to anyone that you know who would like to be included in this reach out to Laura. If possible, could you please copy me on the email that you send to her friends whose email addresses I do not have so that I can include them on future emails? I would greatly appreciate it. I would also appreciate any suggestions that you may have and would like me to pass on to the support group of possible ideas in how we can help Laura. It is so frustrating for me, and I know you all feel the same way, to see someone who is so loving and compassionate to be fighting this terrible illness. Any little thing that we can do is a big help. I want Laura to know how much she has touched all of our lives and how loved she is. I hope that you all are well and hopefully I’ll hear back from you guys with some good ideas! You can reach me on my cell (302) 438-4839 or at either one of these email addresses: molly.a.breffitt@wellsfargo.com or moomoo1041@aol.com. Love, Molly "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me
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peter i love you dearly hun but the fact that you volunteered to do that?? what the frig is wrong with you - and i thought you were a smart guy zeesh "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me
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i think you might be traveling on crappy days or it could also just be the areas you are travelling to and from - i found an amazing deal from east coast to west coast - keep looking - check the airlines individually and other sites like orbitz and kayak.com "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me
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for those of you that have reached out to laura - thank you - thank you so much - i cannot even begin to tell you how much it means to know there are genuine people out there that really care about others - and it really warms my heart to know you exist!!! just a brief update - i was really excited about the overwhelming outpouring you all have done for her and myself, so i decided to call her a couple of nights ago to give her a heads up on hearing from more strangers ....when she picked up the phone she was crying... i asked her if she was ok and she said she had a really shitty day and didnt feel like talking about it... not 5 seconds later she started crying more and said she had received a phonecall from her doctor and the news was not so good... she said shed be moving back to the east coast right after me and our other friend left...i was totally in shock with this and told her everything would be ok - i'd stay around the area for as long as she needed me to be there - i'd go every day if i had to so long as she knew she was not alone... she then stopped me and said it would be ok and not to worry because i wouldnt have to do anything like that for very long...ugh talk about heartbreak it is rather devistating to hear one of your best friends tell you she just got horrible news like that and not be able to be with her to hug her... though i am really glad that i will be out there this weekend it just sucked not being able to hold her.. please continue to keep her in your thoughts and prayers - and have positive vibes sent her way once again you all amaze me - thank you for your continuing support "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me
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yes go gators - even though i have ties with fsu and thats the ultimate no no - i have more bitter blood towards osu - kick their ass gators :) "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me
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And as I was quietly minding my own business, SBS said...
kenz replied to Frenchy68's topic in The Bonfire
indeed he does - what a fantastical bond that has started ;) "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me -
the outreach by all of you has just been so overwhelming... thank you so very much for all of your support... for those that asked - i sent you her information and those that offered vibes they were sent to her... i was able to book a flight out for next weekend with another one of our really close friends and am so very excited to see her... thank again to all of you - it means more than i could ever say - i will keep you posted as she continues to fight this battle!! thanks again!! ****much love and many hugs**** "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me
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to all that have responded here and sent PM's i really appreciate the thoughts... i'll be ok - shes the one that needs the most support right now..and thats what just hurts so bad... shes is seriously the most beautiful human being.. and she deserves so much better than this... i plan on getting out there - not sure how or when but i'll get there - i don't plan on us moping around - i've been able to get her to smile in her darkest times before - i just hope i can do it again- i just want her to feel like she is worth it because she so is... she is my hero and i just want her to be happy and healthy and free thanks so much for all of your support "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me
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good luck with your surgery - i hope you have a speedy recovery!! "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me
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i apologize for this but i need to get it out... about a year ago i posted a thread on here about my very dear friend laura who was having a harsh battle with leukemia, and to make matters worse she was married to this guy that was more concerned about himself than her... well since then laura had moved from the east coast to seattle to have a stem cell transplant at the most prestigious center for transplants... she has been there ever since so they can monitor what they thought was good progress... she went into remission for about 3 months, and at routine check-up they discovered that not only did she have leukemia again, but this time it was a more aggressive kind... they had given her some type of experimental drug that was to last only 12 weeks... well week 12 has passed and the drugs did not take - she is desperate to find a stem cell donor - and her insurance will not cover another search 1)because she had one already and 2)because she took this other drug she had sent an email to all of her girlfriends late last night telling us all of this and it was titled "reinforcements" - she told us that her "days were numbered" and she was doing the best she could to find a way to get better - but essentially she was doing it alone... this is the part that REALLY gets to me... her husband (who is notoriously blunt and rude) is the ONLY person she knows out there besides some people she has met at the treatment center (who are either dying or dead)... he told her that he no longer loves her and that she is not the person he thought she was - and he was sick of being tied up in her medical "affairs" and essentially has convinced her that her cancer has ruined his career.. he won't hug her when she cries and offers her no support.. .she is stuck in seattle until the doctors can figure out what is going on with her - hopefully they can bring her back to the east coast - the email was asking any of us to go out and visit her, even if only for a day.. ugh that fucking KILLS me... i graduate on saturday and still have no job... i'm going to have to find a way to get there because i don't want her to be alone... but if i go and any of you are out that way and can meet up for coffee or something and maybe even be able to offer her an ear face to face every now and again i would be so forever indebted to you - she is the most wonderful, kindhearted loving friend anyone could ever ask for, and even in her illness would do anything for you... i can't stand that she is there alone - when she was here at least i was able to see her almost every day and now i'm lucky if i see her every few months... im just at a loss i guess... but please keep her in your thoughts and prayers and send good vibes towards her and her family because she needs it more now than ever sorry for the rant but thanks for letting me get it out!! i love you guys! "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me
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my deepest condolences to all that were a part of tommy's life!! ***hugs to everyone*** "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me
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much love and super big hugs sent to you!!! "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me
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happy birthday to one of the most remarkable people i have been blessed to have in my life - you are a great friend - i hope your day was a great one!!! "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me
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happy birthday sweetie - i hope all of your wishes come true "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me
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i am keeping you and your family in my thoughts and prayers - i hope everything turns out for the best "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me
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He confused lint with lent, maybe he has an erection right now and doesn't have any blood working his brain. hahah thanks for clearing that up - it was a lame-o attempt at being funny :) but its ok - i still like ya "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me
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what the hell is pocket or belly button? "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me
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i gave up chips for lent and that was only 40 days and THAT sucked... a year?? not likely for me - but good luck girl - you still have 2 days to stuff your face with as many chips as you can - maybe eat enough to get you sick that way you're turned off by them :) let us know how it goes :) "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me
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have a wonderful birthday :) "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me
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condolences to all of benny's friends and family "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me
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i made a painting of the cover of the new beatles album "love" that was remixed by george martin :) i took a picture an posted it in my "what kind of gifts do you like" thread - it's also on my myspace page... he loved it :) "life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me