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You or your s/o's tests positive for Huntington's chorea- Do you procreate

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Huntington's chorea,:
This is a genetic disorder which is passed on from generation to generation. It actually results in the gradual degeneration of brain tissue in middle age (can be as early as mid to late 20s)
As the disease progresses, any function that requires muscle control is affected, this causes reduced physical stability, abnormal facial expression, impaired speech comprehensibility, and difficulties chewing and swallowing. Eating difficulties commonly cause weight loss. HD has been associated with sleep cycle disturbances, including insomnia and rapid eye movement sleep alterations.
Selective cognitive abilities are progressively impaired, including executive function (planning, cognitive flexibility, abstract thinking, rule acquisition, initiating appropriate actions and inhibiting inappropriate actions), psychomotor function (slowing of thought processes to control muscles), perceptual and spatial skills of self and surrounding environment, selection of correct methods of remembering information (but not actual memory itself), short-term memory, and ability to learn new skills, depending on the pathology of the individual





It is one of the very few diseases that we can stop TODAY.
BUT
you have to not procreate if you are a sufferer.
Huntington's disease is autosomal dominant, needing only one affected allele from either parent to inherit the disease. Although this generally means there is a one in two chance of inheriting the disorder from an affected par




So if you had Huntingtons would you pass it on.


Me NOT A CHANCE
You are not now, nor will you ever be, good enough to not die in this sport (Sparky)
My Life ROCKS!
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Same comments....

undecided on the procreation if I had Huntingtons

would not have an abortion.



(but... as it is, I know I have a genetic mutation right now and would still be happy if I were pregnant)

I would let the dice roll and once the child was old enough, educate him/her on the disease and then he/she can decide to get tested or not. Might be a horrid dump to place on a child, but he/she might have had a REALLY cool 20+ years up to that point. Why deny that?



--------------------------------------------------------------------------------

that's the dilemma, Huntington's is an horrendous diseasae, which can last a very long time, with very very poor quality of life.


I'm interested in seeing if those who voted to terminate a Trisomy 21 baby will vote the same here. (or interested in the 2 sets of data).

Trisomy 21 has a "Different" quality of life.

Huntington's is progressive, debilitating and horid. and in from my POV a worse fate than Downs Syndriome.
You are not now, nor will you ever be, good enough to not die in this sport (Sparky)
My Life ROCKS!
How's yours doing?

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Arlo Guthrie came out OK.

he didnt have it,

That's my point. His Dad (Woody Guthrie) had it.

so what, the question is would YOU,
Woody had very little information about HD, and had procreated BEFORE he found out about it. we now live in the 21st century.
In my description i note that the incidence is aboutv50%
So instead of making pointless comments answer the question or dont post.
You are not now, nor will you ever be, good enough to not die in this sport (Sparky)
My Life ROCKS!
How's yours doing?

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I had all sorts of thoughts to write, but for the moment will restrict myself to your particular hypo:

No - knowing what I do now about the chances of passing that disease on to a child, I would not procreate if I could help it, and (depending on which one of us was the carrier) I'd probably want to use surgical birth control.

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NO, that sounds awful, and while I feel compassion for those who suffer from it, I cannot imagine them being willing to engender a child who is very likely to suffer the same sort of TORMENT.

It sounds like a life lived (and then ended by) such a disease would indeed be TORMENT.

Prior to procreating, there is no child to speak of. No child that you could say, "Oh, but he would like to have had a chance to live instead of never being born." There is no lament about the life that didn't get created except on the part of the PARENTS who might (selfishly?) crave to hold a little one of their own.

I don't like having to say it, but that really does seem like a selfish self-indulgence, to have a child knowing that you have a 50% chance of making him/her grow up to be stricken thus. A personal desire to be a parent should not triumph over a selfless desire to not make a child of yours grow to suffer such a horrible fate.
Spirits fly on dangerous missions
Imaginations on fire

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NO, that sounds awful, and while I feel compassion for those who suffer from it, I cannot imagine them being willing to engender a child who is very likely to suffer the same sort of TORMENT.

It sounds like a life lived (and then ended by) such a disease would indeed be TORMENT.

Prior to procreating, there is no child to speak of. No child that you could say, "Oh, but he would like to have had a chance to live instead of never being born." There is no lament about the life that didn't get created except on the part of the PARENTS who might (selfishly?) crave to hold a little one of their own.

I don't like having to say it, but that really does seem like a selfish self-indulgence, to have a child knowing that you have a 50% chance of making him/her grow up to be stricken thus.
A personal desire to be a parent should not triumph over a selfless desire to not make a child of yours grow to suffer such a horrible fate.

And yet it happens everyday
You are not now, nor will you ever be, good enough to not die in this sport (Sparky)
My Life ROCKS!
How's yours doing?

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NO, that sounds awful, and while I feel compassion for those who suffer from it, I cannot imagine them being willing to engender a child who is very likely to suffer the same sort of TORMENT.

It sounds like a life lived (and then ended by) such a disease would indeed be TORMENT.

Prior to procreating, there is no child to speak of. No child that you could say, "Oh, but he would like to have had a chance to live instead of never being born." There is no lament about the life that didn't get created except on the part of the PARENTS who might (selfishly?) crave to hold a little one of their own.

I don't like having to say it, but that really does seem like a selfish self-indulgence, to have a child knowing that you have a 50% chance of making him/her grow up to be stricken thus.
A personal desire to be a parent should not triumph over a selfless desire to not make a child of yours grow to suffer such a horrible fate.

And yet it happens everyday



True enough. And yet, philosophically, there is a HUGE grey area, isn't there? For example, many types of conditions, or diseases, etc. can be passed genetically, especially if both parents have the condition, or even the trait: deafness, dwarfism, retinitis pigmentosa (leading to blindness by adulthood), sickle-cell anemia, etc. They, too, confront this issue when deciding whether or not to procreate.

So I guess one philosophical / ethical question is: when is the condition, disease, etc. so egregious that procreation should, or should not, be avoided?

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So I guess one philosophical / ethical question is: when is the condition, disease, etc. so egregious that procreation should, or should not, be avoided?

When it sucks the life and soul and mind out of you like HD does
You are not now, nor will you ever be, good enough to not die in this sport (Sparky)
My Life ROCKS!
How's yours doing?

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So I guess one philosophical / ethical question is: when is the condition, disease, etc. so egregious that procreation should, or should not, be avoided?

When it sucks the life and soul and mind out of you like HD does



That can still be argued with. Mind you, HD doesn't plunge the person right into that existence from birth; not hardly. Lou Gehrig lived until age 37. Woody Guthrie lived until age 55. Each had very rich, full, lives prior to roughly their last year of life.

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So I guess one philosophical / ethical question is: when is the condition, disease, etc. so egregious that procreation should, or should not, be avoided?

When it sucks the life and soul and mind out of you like HD does



That can still be argued with. Mind you, HD doesn't plunge the person right into that existence from birth; not hardly. Lou Gehrig lived until age 37. Woody Guthrie lived until age 55. Each had very rich, full, lives prior to roughly their last year of life.


I think you will find their last year lasted a might longer than one year
You are not now, nor will you ever be, good enough to not die in this sport (Sparky)
My Life ROCKS!
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Erm... did you actually read your post cos it's gibberish even for native english speakers.

Did you actually read my amended post or just the quote in Christies because your post is made after my amendment
You are not now, nor will you ever be, good enough to not die in this sport (Sparky)
My Life ROCKS!
How's yours doing?

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Having a grandfather, uncle, and cousin who had Huntington's Chorea, and seeing them suffer for YEARS before succumbing to pneumonia, it was my family's decision NOT to procreate.

Then a wonderful test was discovered by a doctor who spent years in Venezuela, studying a tribe who had a very high incidence of the disease. She created a series of tests that would determine if you were afflicted or not. My mother went, secretly, to have the test done in Boston. Thankfully she discovered that she didn't.

However, she watched as her father declined, suffered for over 40 years, and died. He had been a brilliant physician before he had to close his office doors at 40 because he couldn't function anymore.

HD is a HORRID disease. If anybody who has a history of it in their family and wishes to have their own children, PLEASE seek out this test and go through the steps to find out if you have it or not BEFORE you procreate. No family wants to see their children die of such a monstrous disease.

ltdiver

Don't tell me the sky's the limit when there are footprints on the moon

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Does the existence of such a "monstrous disease" not cause at least a few "believers" to have pause when wondering, "What kind of 'loving God' would afflict his beloved creations with such abominations?"

This may take the thread in a different direction, and maybe that's ok and maybe it's not. If not, then don't, and I won't pursue it. But this subject definitely makes me wonder (further) why people are able to doublethink their way into believing in (much less worshiping) God. For every "miracle" that God supposedly provides (saving the kid trapped in the well, sending the "miracle" kidney donor, allowing the fireman to reach the sleeping toddler, etc.) there are horrendous examples by the MILLIONS of people living in subhuman SQUALOR conditions, MILLIONS DYING OF STARVATION, MALARIA, DIPTHERIA, TUBERCULOSIS, ETC. ETC. ETC. EVERY YEAR. People shitting blood until they die. People choking on their own blood and mucus until they die.

This is "what God wants"? What kind of God wants what we would see if we opened our eyes to just how widespread human suffering is across the globe?
Spirits fly on dangerous missions
Imaginations on fire

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Does the existence of such a "monstrous disease" not cause at least a few "believers" to have pause when wondering, "see if we opened our eyes to just how widespread human suffering is across the globe?



What there's not enough idiotic pro-con religious crap on here already that you have to try to bring in in here too.
There are dozens of threads already dealing with this topic, why not resurrect one of those.
You are not now, nor will you ever be, good enough to not die in this sport (Sparky)
My Life ROCKS!
How's yours doing?

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