kenz 0 #1 January 11, 2007 this was an email i received - since many of you have reached out i wanted to post this up here and ask for any more ideas - or offers for assistance - please guys we are asking for anything - and keep those prayers coming!!! and if anyone knows how i can set up a paypal account in her name that would be greatly appreciated again - thank you all ----------------------------------------------------- Hi guys. This is Molly B (for those of you who don’t know me or don’t recognize this email address). I am writing to you to ask for your help and support. As much as I hate to say this, unfortunately, Laura has hit a bump in the road and things are going to be very rough from here on out. Laura received updates today that her progress isn’t looking good and her options are limited in taking the next step in the road to recovery. She will know more after some appointments next week, but what it may come down to is her decision on whether or not to enjoy her quality of life and enjoy what time she has left or attempt a second transplant or other options that can possibly buy her some time and then look into possible clinical trials or new drugs that may be released in to the market soon since her body has stopped responding to the most recent drug treatments. There is also a possibility that Laura may be coming back to DE sometime soon to see her doctor’s here, but that is to be determined after next week. I am on a committee through our church that is working with her parents to form a support group to help with things that need to be addressed down the road. The main thing is to keep Laura thinking positively and to send her hope and faith. Unfortunately, Laura isn’t up for too much talking because she doesn’t want to think about the down side of things and doesn’t want to keep talking about her health. What she really wants from people is to hear good news and good things that are going on in her friends and family’s lives. Through the support group with the Presbyterian Ministry, I was asked to be the liaison to Laura’s friends and the support group. What they want and need is for us to send Laura good thoughts and humor. They suggested that perhaps, somehow, we can all take turns and send Laura a ‘joke a day’ email that can bring a smile to her face. We are also going to compile a scrapbook but we haven’t yet decided how we are going to do this. We were thinking that for anyone who is interested, they could create their own page and personalize it with pictures and things that are meaningful between Laura and you and then send it to me and we will put it together and send it to her. If that is an option and you are interested, please let me know so that I know how many to expect and I can get an idea of when I may be able to complete the scrapbook. To summarize the meeting we had tonight, these are issues we are addressing right now. - ASAP - A team with internet savvy and access to a computer to work on researching possible clinical trials for Laura - ASAP - publicize Laura's Carepage. - Ask people to donate frequent flyer miles - Ask people to donate hotel reward points (for visits to Laura; her home is small) - Explore fundraising if Laura gets into a trial; establish an account for donations. Currently one of our church members is a member of the band called ‘Club Phred’ that plays at local establishments around Newark. They have volunteered to play for a fundraising event (possibly at DeerPark in February since they have played there before) that will help us to raise money. This money can be used for the following things: sponsor a Bone Marrow drive, help pay for medical expenses, help with travel expenses and down the road, help pay for a transplant/clinical trial. What I am also asking is that you forward this email on to anyone that you know who would like to be included in this reach out to Laura. If possible, could you please copy me on the email that you send to her friends whose email addresses I do not have so that I can include them on future emails? I would greatly appreciate it. I would also appreciate any suggestions that you may have and would like me to pass on to the support group of possible ideas in how we can help Laura. It is so frustrating for me, and I know you all feel the same way, to see someone who is so loving and compassionate to be fighting this terrible illness. Any little thing that we can do is a big help. I want Laura to know how much she has touched all of our lives and how loved she is. I hope that you all are well and hopefully I’ll hear back from you guys with some good ideas! You can reach me on my cell (302) 438-4839 or at either one of these email addresses: molly.a.breffitt@wellsfargo.com or moomoo1041@aol.com. Love, Molly"life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me Quote Share this post Link to post Share on other sites
kenz 0 #2 January 11, 2007 i am bumping this just because it was locked last night after i was unaware of some rules and i apologize for breaking them... and i have now been given permission from HH to go ahead and do so anyway for those of you that have been asking and reaching out to laura this past week - thank you - it really has meant the world - if any of you can contribute anything - even if you just keep thoughts and prayers sent her way it would be greatly appreciated... if need be you can either contact me or go ahead and email molly directly thanks again for all of your support - i will keep you posted as best as i can i will be going out to visit her tomorrow so i will be MIA for a couple of days but i promise to get back to you all as soon as i get back... thank you again"life does throw curveballs sometimes but it doesn't mean we shouldn't still swing for the homerun" ~ me Quote Share this post Link to post Share on other sites
